The Language of Love

The 5 Love Languages for Children

Last week someone loaned me this book: The 5 Love Languages of Children by Gary Chapman and Ross Campbell. I’ve been impressed, and I will share what I’ve gleaned from this very readable, practical and loving little gem of a book. It is helpful for parents of typical children, and may be especially useful for children with special needs.

The 5 Love Languages are physical touch, words of affirmation, quality time, gifts, and acts of service. While all of them are important, usually, after age 5, one of them becomes primary. Before age 5, use them all generously. Most of us love our children, but sometimes they do not feel our unconditional love. And perhaps it is because we are not showing them our love behaviorally in their primary language. Sometimes, even when we don’t feel loving because of stress, work, a fight with spouse, or any number of other reasons, we can still behave lovingly.

Let’s take them one at a time and I’ll give you some examples from the book, as well as my life and clinical practice with children.

Physical Touch: Hugging, stroking their hair, rubbing their back, playful wrestling, piggy back rides or rides on shoulders, kissing hello and good bye, holding hands, snuggle while watching a movie, allowing or encouraging children to sit on your lap. These are just a few. I’m sure you can think of more.

One of the problems with a child who has touch as a primary love language and doesn’t get it, is that s/he may seek it elsewhere inappropriately. 

And there are children with sensory issues who do not like touch. With them, it is important to respect that and at the same time, find some tolerable way to give them a little. A mother told me once that her daughter really was averse to physical touch. Yet when they watched movies, especially on her computer they would touch their heads together and it felt like the sweetest thing in the world. 

If as a parent you are uncomfortable with touch and your child’s primary love language is touch, it will be important to find some way to touch your child at least once a day and build up from there. It can also be helpful to touch your own skin, rubbing your arm gently, and your shoulders and even your ankle and legs. That will help you become more comfortable with touch.

Words of Affirmation: Telling them something specific that they did and that you really appreciated; putting a word of encouragement or a compliment in their lunchbox, or frame a child’s drawing telling them why it means so much to you. If you have to be out of town, write a note for every day you are away letting the child know you are thinking of them. Be specific with praise (not “what a great picture”.....but rather,  “I love the red in that picture”, or “I get the feeling of movement from how you drew that...how did you do that?” Put a long sheet of butcher paper on the back of their bedroom door and write something complimentary every day about what your child did or said. These words become like deposits in an emotional bank of sorts. And when the going gets rough the child can go to the bank and remember/feel the praise and beautiful effort that the parent recognized and put into words. That can provide emotional support in a dark time.

Quality Time is just what it says: spending time with your undivided attention on your child, talking, laughing, playing. The book has 2 pages of suggestions if you need some ideas. In my practice, I usually recommend scheduled, regular quality time with each child every week. The child will look forward to it and it becomes like sacred time, especially if there is more than one child at home. But even for only children, this time with undivided attention is invaluable. I did this with my daughter for years. It was not an easy task to not use the phone or computer, to not fit in a load of laundry, or to not let anything else get in the way of that 30 minutes once a week. I know she loved it and felt closer to me, but I was amazed at how much closer I felt to her. Actually the first time we did it, a lot of anger came out. She was aggressive with the toys. I asked what she was angry about and it all came tumbling out. It was mostly about the divorce, going back and forth, and how much busier I was. I was able to hear and listen in a way that I hadn’t done as well previously. It became a lovely ritual for us. And in my office, a father told me that when he took his son to the park, he was annoyed that his son kept asking him to play with him. He wanted him to go off and play with the other children. But with some reflection, he could see his son wanted to play with HIM, not anyone else.

Gifts: At first I bristled against this idea. I don’t want children to become entitled or expect gifts constantly. But what I got from this is that sometimes gifts make a child feel special, loved and seen, especially when given unexpectedly. I had a mother who bought her child a small gift every payday. The child loved the gifts and it made her feel loved. You can find a feather and wrap it up or present it in a special box, or gather a bouquet of wild flowers, or dedicate a song to him/her, or buy tickets to a concert that you know h/she will love, or create a treasure hunt with a map to the treasure. It is the surprise of the gift and the knowing what the child likes, that will deepen the love bond between parent and child. There’s nothing like feeling seen!

Acts of Service: One mother told me the best thing she could do for her children was make them a sandwich. Acts of service are times when we do things for our children that we don’t normally do for them, like cleaning their room or doing a chore that is usually theirs. It is also helpful to do acts of service in the community together, like volunteering at a soup kitchen, or donating toys to a shelter.

You have to watch your child carefully to discover which one is their primary love language. Sometimes you can give your child a choice of how to spend time together, offering two from different categories and see which they prefer. For example, “I have some free time tonight. Would you rather watch a movie and snuggle on the couch or go buy you a new pair of tennis shoes?” (Quality time, with physical touch tucked in there, or a gift.)

I highly recommend the book. Speaking your child’s love language can help your child receive on a deeper level the love you have to give.

Frustration…..How To Deal With It

Frustration......How to Deal With It

We decided to dedicate this week’s Mom’s Group for Mom’s of Children With Special Needs to FRUSTRATION. But you know, it applies to every parent and spouse. Who among us has not felt frustrated by our child or a lover or a friend? 

We asked for examples of frustration. There were so many.  I will  focus only on one here. Almost every one of us were frustrated by our kids not brushing their teeth. That was a surprise to me. I thought I was the only one who had a child who refused to brush. In retrospect, I think it is a sensory issue because most of our children have these sensory issues, and brushing hurts in a way, and feels intrusive in another way. One Mom said she wished her child had all her teeth! Due to overcrowding, some permanent teeth had to be removed and she was given a partial dental plate. But sometimes she doesn’t wear it, and the mother would be so frustrated/put off by that. Our children with Special Needs somehow don’t really care how others perceive them, whether it be odd clothes, bad breath, or social faux pas. But it does frustrate us, who keep giving them advice and direction, all the while trying not to be intrusive, even though we are. One mother told us she keeps a toothbrush in the car for her and her children and they brush at red  lights on the way to school making it kind of a game and easing the tension around this important self care task. On and on, the examples became comical to us as we related to each and every one of them. One mother said that she realized with relief that her children were not the only ones who were weird. Our fear that they will be excluded socially or be rejected and isolated drives our “nagging”behavior and intrusiveness.

But what is a mother to do? Well, first of all we need to heed the saying from AAA....H.A.L.T.... for us and our child. Don’t get too Hungry, too Angry, too Lonely or too Tired. These, or even one of these, is a set up for children to meltdown, not listen, act out. And for we mothers, they can rob us of the stamina and patience we need to deal with a dysregulated child. 

We can reach out to a friend or someone who will understand, we can take a short time out for ourselves ( a bathroom trip, or go to our bedroom to breathe and self talk, calming ourselves); ask a spouse or partner to take over for a bit while we pull ourselves together. Probably there are other strategies you have come up with, which I would love to hear about.

But then there is the repair routine created by The Circle of Security team. (The Circle of Security Intervention by Bert Powell, Glen Cooper, Kent Hoffman, and Bob Marvin

The first is when we are upset and our child is upset, we need to calm ourselves and remember that we need to be bigger, stronger, wiser and kind. And remember our child needs us, no matter what.

Secondly when we are calm enough and our child is still upset, we need to take charge so our child is not too out of control. Sometimes it is helpful to change location like taking a walk outside or going to a designated “time-in” spot where we are together until feelings begin to change. 

We help our child bring words to his/her feelings. (“You seem really upset. I wonder if you are angry? You don’t like it when I say no to you. Does that make you feel like I don’t care about you or what you want?”)

Then we can acknowledge our feelings.(“When you throw things at me, I feel scared and worried”).

Stay with your child until s/he is calm enough. Stay in charge and stay sympathetic.

When both of us are calm enough, we can use words to help the child talk about the feelings and needs s/he is struggling with by listening and talking together.

Then we can talk about new ways of dealing with this problem when it comes up in the future. It is helpful for children to have more options of how to deal with difficult feelings. This bodes well for dealing with future issues.

And what the Circle of Security says is that “bottom line it is the relationship (and only the relationship ) that will build my child’s capacity to organize his/her feelings.” Ruptures in relationship are rooted in a need to reconnect. When we remain in charge as someone who is bigger, stronger, wiser and kind, feelings will settle and he relationship can be repaired.

There is no such thing as a relationship that does not have rupture. The key and strength of the relationship depends on the repair, the quality of the repair. So when we feel like we have blown it, we can use this repair routine and reconnect lovingly with our child. 

And one last thing.....some of our children have really annoying habits. Often they are self-soothing or sensory integration issues. Our children have little control over them. Shaming them only makes them feel badly about themselves. We need to soothe ourselves and have compassion for them whenever we can.

Bless you for what you do for your child!

Tell me YOUR stories.

A Mother's Aching Heart

What Do You Do When Your Heart Is Aching and Breaking For Your Child?

In some ways I am so lucky and blessed to have my daughter be so successful. She is smart and articulate. She is wickedly funny. She is careful with her (my) money. She is responsible and honest. I love her politics!  And she is in college pursuing her passion. What could be the problem?

She is lonely. She has a hard time initiating with friends and waits to be called or texted. When no one does, she feels no one likes her and that she is all alone in the world. I don’t know what to say, then. If I tell her how awesome she is she responds with, “You are my mother. You are supposed to feel that way”. It doesn’t help her feel better at all. If I give her advice (oh God.....dreaded mother advice) like maybe you could invite someone to do something with you. She says she doesn’t know what to do and if she can’t even get a response to texting “Hey, what’s up?”, she doesn’t think anyone will respond to an invitation. She is isolated and doesn’t leave her apartment for days. 

Argh! My heart breaks for her. And she doesn’t want to come visit me or have me visit her. Without the structure of school, she is at loose ends. So I try to listen empathically. And then she reassures me that she is fine and will be okay. She knows my heart is aching for her.

I’m imagining that there are many mothers of kids with Special Needs whose hearts break and ache for their children every day. When they come home from school having been bullied, or mocked, or left out, or the last to be chosen on a team, what can we do? For them; for ourselves?  Our kids have to deal with a cruel world that misunderstands them and doesn’t support them in the ways that are needed.

 And  parents who have children with a chronic illness, or a mental illness.....how do they maintain an attitude of bigger, stronger, wiser and kind? How do we listen reflectively? How do we not  pathologize them or infantilize them. And how do we keep ourselves and them from being in a state of denial refusing to address the reality of the situation. How do we not give up on them? How do we face hopelessness? 

How do we explain them to judgmental, “well meaning” friends, teachers, acquaintances and relatives who infer or directly accuse us of poor parenting? How do we deal with our beloved child’s isolation; as well as our own?

I would love to hear from you readers about how you have dealt with this in your own situation. For me, I have run the gamut. At first, I worried silently. I loved her with all my heart, and yet I knew something was wrong. Her Dad thought I was being critical of her and seeing problems when they were not there. I think this is typical in many families where one parent senses something is off and the other defends the child, causing a rift between the  parents. This can go on for years and is so painful to both parents who have different views on what is happening and very different styles of dealing with their children.

After worrying silently, I went to professionals for assessments and evaluations trying to gain more understanding. This is an extremely costly endeavor and invokes such anxiety in parents and children. The parents are scared to death to find out something frightening and the child, no matter how young, is wondering what is wrong with me? Why am I going to all these doctors?

As a child therapist, I do my best to help families with this phase. I am able to use non -judgmental language, and accurate descriptions to help everyone understand what is going on. I must say that I have had mostly great experiences with this, probably because I have been there and know how to talk to the parents and kids with love and compassion about differences.

My next phase was trying to change the world for my daughter. I was in the school helping the school counselor devise empathy training to help the other kids understand her differences. The counselor told me she had done this in my daughter’s 6th grade classroom, and described to her classmates how kids with asperger’s syndrome have no sixth sense (social sense). And that can make them seem awkward or “strange”. But it is not their fault; just like it is not a blind person’s fault if they can’t see. And you wouldn’t make fun of a blind person or tell a blind person to cross the street without assistance, would you? In the same way, the child with a social difficulty needs help and understanding; not derisiveness or tricks being played on them. My daughter apparently raised her hand and said, “That’s me. That’s what I have.” (So asperger’s -like to do that). And several classmates apologized to her right then and there. She  stood up and said, “I will accept your apologies. But you shouldn’t make fun of anyone for any reason.” My heart swelled with pride, but it was also aching for her. She was so vulnerable.

And on it goes. I advocated for her. I tried to raise consciousness about kids with Special Needs. I fought the school system to get her accomodations. I wrote about anti-bullying in the newspaper. But I often cried myself to sleep and worried. I believed in her and knew she would be an outstanding human being. But when your child suffers, you suffer.

As I’ve said before, having other mothers of children with Special Needs to talk to has been invaluable. Finding self compassion has been helpful. And at some moments, I find this awesome connection with her. That makes my heart sing.

Please share your stories with me. It takes us reaching out to each other and saying, “I feel you. I feel your pain”  to bear an aching heart. Bless you for all you bear for yourselves and your children. We need each other and they need us.

Summer Envy

Summer Envy

I read a piece in the NYT this morning http://www.nytimes.com/2014/05/25/nyregion/sympathy-for-the-working-mother.html?ref=todayspaper&_r=0 called Summertime Sympathy for the Working Mother. It was basically about the envy/longing that working mothers (who will be at their out of the home job, all summer) feel toward Moms who can leave the City with their children for a month or more to go to the beach in Croatia or Maine or Cape Cod, or go to a family tennis camp for the month of August, or just spend the summer days being with their children on trips to San Francisco, Disneyland, or the San Juan Islands.

I remember feeling that way when my daughter was in all those camps the YMCA put on, “enriching” summer school programs, and swimming lessons. I had been hopeful that they would provide some sort of stimulation, fun and even creativity while simultaneously serving the main purpose of providing child care. I don’t think there was one program that she liked. And she came home from the first day of “enrichment summer school” saying dejectedly,  “ Mom, you won’t believe it. Recess is TWICE as long in summer school.” She hated recess, always; but even more so in the summer. It was hot. There was no structure provided. No games, no inside board games, no card games, no art, no one helping outside getting the kids involved with each other. She was ignored by most kids. She had to stay outside feeling alone, bored and uncomfortable. I marched down to the school and complained. Couldn’t they offer something for the kids who didn’t play on the bars, or play basketball? I was angry.

I acted outraged. But nothing changed. I felt horrible. I had to send my child to a place she hated, so I could work, when I would have loved to have stayed home with her... I think, or so I thought.

On the other hand, imagine being a stay at home Mom because you have a child/children with Special Needs and you can not afford child care or camp, and there is no summer school for your child. Long summer days are spent trying to keep your children from playing endless video games or watching Youtube videos or fighting with each other. The children seem listless, uninterested in reading or sports or riding their bikes. Some hate the water. Some hate being outside. Some want to sleep all day.

Hey, going to work every morning seems like a piece of cake compared to this. You know they should be doing some reading, writing and arithmetic during the summer months to keep them from falling behind. (Statistics say that it takes until November for kids to catch up to where they were in June if they do no school work over the summer).

More guilt. Try to get an ADHD kid to read a book or write a story over summer. Try to get a kid with Oppositional Defiant Disorder to do pages in a math book a half an hour a day all summer. Probably not going to happen.

So I’ll tell you what I did when my daughter turned 11 and she refused all those camps, lessons and programs. It’s not a perfect solution and won’t work for everyone. But maybe it will spark an idea for some of you.

Yes, my daughter was “addicted” to video games, she loved TV, and she hated going to what she called, “the foreign land, ‘the out of doors’. UGH! How could this be happening? Couldn’t I MAKE her go outside, swim, read, watch good historical movies, journal? Couldn’t I FORBID her from watching TV and playing video games? (I love the book “Shut Up About Your Perfect Kids”!! which talks about parents who can do that). Not without having a very, very unhappy 11 or 12 year old. No one wants their kid to be miserable all summer. Or angry and sullen with you most of the time. 

I did institute an hour for hour outside time for TV and video games. So she had to be outside for an hour in order to get an hour of video gaming or an hour of TV. She could ride her bike or swim or she could even read outside and then she could get her beloved video or TV show. Mostly that worked, but it wasn’t easy. She wore me down some days.

The best thing was inspired by a group of us mothers at a Memorial Day picnic. We were all in a dilemma about the summer. Some of us worked outside the home and some did not. There were about 5 or 6 of us. We decided to “sign up” for days to have the kids “play together” with no video games or TV. I didn’t work on Fridays that summer so I volunteered to have the kids about 5 Fridays during the summer. I had between 5 and 6 kids each time. We went tubing on the Russian River,  to Golden Gate park to visit the science hall and the planetarium, and to Great America. I also created an art day in the back yard with paints and clay. One parent took the kids to China Town in San Francisco. One parent took the kids to a water park. Another parent hosted an  outdoor adventure in their wooded half an acre back yard. And one day we agreed they could play video games together for 2 hours with a bike ride to follow. I still needed to have a child care person for her on the days there were no get togethers. But it sure  helped to have some days where she was with kids she liked doing something stimulating.

Other parents have shared with me that they hosted an art show of their daughter’s paintings and art creations inviting neighbors and adult friends. It took many days to  create the exhibits and the art show party was complete with snacks and drinks. I was invited and it was quite festive. That talented girl was beaming!!

My daughter in later years did co-create a kind of kid’s newspaper with news of the friends and what they were doing. My daughter did the cartoons using her friends as the characters. This was very cool.....but of course it didn’t last long. Follow through in Summer is difficult at best.

And I know some of you have children with no friends. Summertime Sympathy is deserved for Mothers of children with Special Needs whether the Moms work all summer or are home all summer. or a combination there of. As this Memorial Day signals the beginning of summer, please know I get the agony summer can bring. Bless each and every one of you for all you do.

And if you don’t do anything amazing for your child, please have self compassion and be kind to yourself. YOU are AMAZING raising your child in the best way you know how.

Discipline

One of the hardest tasks for a Mom of a child with Special Needs is discipline. When do we say “No”? How do we assess whether the child can legitimately do something and when s/he can’t. What is reasonable to expect? What is a reasonable consequence, if we even accept the idea of consequences. When do we advocate for them without giving them a sense of entitlement or infantilization or helpless dependency. Do our other children think that the child with Special Needs gets away with too much? Do our husbands think that, too?

I wish I had the answer to all these questions, but I think it has to be addressed and assessed individually in each family. One thing I do know is that if we find ourselves getting unreasonably angry or judgmental or disgusted with our child, then something needs to change. It could be that some limits need to be set, or that some limits need to be enforced. Or it could be that our limits are too demanding, too harsh. Or it could be that we need some rest and recuperation. Or maybe we need the companionship of someone who will understand. I hope you can find that here.

I was raised so differently than how I parent. My mother was an angry, resentful woman who probably should  never have had children. I love the cocktail napkin that shows the woman serving cookies and the speech balloon says, “My secret ingredient is resentment.” Yep, that’s her. She thought I was overly sensitive and she could not “be with” my feelings, especially anger, sadness, or fear. I knew there must be a better way, which is why I became a child therapist. But when you’ve not had “being with” your child’s feelings modeled for you, it is not easy to do this.

The first thing is to be aware of what’s uncomfortable. For me, it’s fear primarily. My parents hated my insecurity and thus they pushed me unmercifully and shamed me when I was afraid. I stayed afraid.....for a long time. I remember one of my first therapists (yes, I’ve had a few.....therapy has save my life, literally) asking me if I felt anything else but fear. She told me I should try on some other feelings. But I was stuck there....at that time. It seems that when a feeling is denied over and over, we cling to it; just as our children do. It wasn’t until I had true compassion and understanding of my fear that I could be with it in a loving way. And that love had to come from me. I had to embrace my fear, know where it came from and why, and then I could emerge from it.

Therapy definitely helped me do this.....but ultimately it is up to me...and you.

My daughter is insecure. No big surprise there, really. I tried talking her out of it, proving to her how competent she was, shaming her, screaming at her to get over it, and then I finally remembered my self at her age. Then I could be with her in that feeling. I told her how I cried every night when I came home from school saying my homework was too much and too hard. I felt overwhelmed, incompetent, stupid and scared. And this from a late teen/early adult who got straight A’s, met with admiration from teachers, and jealousy from classmates because I ruined the curve. You see, it’s the feeling  that has to be accepted and comforted and loved. When my daughter heard about my insecurity, she softened and our talk deepened. It was hard to listen with all of my heart and soul. 

I had to check my own insecurity of her being insecure.

In an effort to help a parent look at what feeling might be most difficult to “be with”, write down some uncomfortable feelings that you have. Now imagine the kindest, most attuned mother you can, and see how she handles”being with” you and this feeling. Listen to that little girl inside of you who is crying and hurting. What does she need. Imagine her soul mother comforting her, holding her and listening to her.

Going to the Dentist

Going to the dentist

When you have a child with Special Needs going to the dentist can be a nightmare. Again, all their sensitivities make shots of novocain almost impossible to administer because most of these kids are deathly afraid of needles. And then where do you go from there with no numbing? Often a refusal to open their mouth.

Getting braces was excruciating. When they put the gel mold in his mouth for an impression, he gagged and threw up and they had to start over. I tried everything to help him.....breathing with him, telling him jokes to distract him, squeezing his hand, telling him to look at me and we could do this. Finally the third time he managed it. I was drenched in sweat. It was so tempting to yell at him and tell him to “Just do it!!!”....something my mother did to me. I felt like everyone in the packed office was staring at me like I was an ineffectual Mom.

Then came the braces and the hygiene required to maintain them. His Dad brought him for a check up one day and the dentist came into the waiting room and called his Dad out for not enforcing good teeth brushing. The orthodontist threatened to take the braces off next time if his teeth were not better maintained. Purely shaming....for father and child. His Dad never wanted to take him to the dentist again.

When it came time for him to have his wisdom teeth out, I tried to prep him and be there for him. We had to make two attempts. the first ended in him breaking down and saying he just couldn’t do it. The second time I gave him some valium prescribed by the dentist. 

It is such a helpless feeling for a mother to see her child panic stricken and still needing to have the medical procedure done. The wisdom teeth extraction did happened, but a month later the incision reopened for the 4th time and this time a kitchen towel soaked with blood was not stopping the hemorrhaging. I was so done with that dental clinic! I called the best oral surgeon in town in a state of ultimate panic. They got him in in 20 minutes. But then came the directive by this dentist to open my son’s mouth. He refused. He was in a state of trauma and panic. The dentist was a saint, but time was ticking and he had other patients waiting. I used every means of understanding and compassion that I could to get him to open his mouth. I used relaxation techniques. Nope. Wasn’t going to happen. So I had to resort to extreme measures. I told him if he didn’t open his mouth, I would have to take him directly to the hospital because he would die if we did not fix this immediately. That worked, thank God! He got stitched up and healed very nicely. 

I did write a letter of complaint to the first clinic and cc’d it to the American Dental Association. They sent me a check for the cost of the oral surgeon. That helped compensate me financially, but the toll it took on my son emotionally was immeasurable, because as a result, it has been an even bigger ordeal to get him to the dentist now. One time we had to resort to sedation dentistry to fill a few cavities at once. That is extraordinarily expensive and wiped him out for the whole day. Do you know  how many days of work I have missed to deal with dental issues for this child? It doesn’t really matter. Finally, I have found an empathic dentist who specializes in work with Special Needs kids and my son handles the dentist beautifully now. Email if you want his name and number.

Who Am I Other Than Mother?

Seriously? I forgot who I was, other than mother, when my daughter was young. But then again, I had a child with Special Needs and felt that being her mother was the only thing that mattered other than my work as a professional Marriage and Family Therapist specializing in Children and their Families. I think I became a therapist so that I would learn how to do this mothering thing, since my own mother was not someone I wanted to emulate. I came from authoritarian parents who believed in spare the rod and spoil the child, shaming, and “get over it” when it came to upsetting feelings. I knew there must be a better way; and I was going to find it, master it, and implement it.

So it was with the greatest joy that I brought my one and only child, a daughter, in to the world, 26 years ago when I was a 38 year old Mom. Fortunately I made it through her childhood and adolescence and am now on the other side with time to re-discover who I am other than mother, while at the same time enjoying a close relationship with my college student daughter.

Mothers of children with Special Needs are a breed all their own. Wait, first....what do I mean by Special Needs? It is a broad term incorporating children on the Autism Spectrum, adopted children who may or may not have Reactive Attachment Disorder, Downs Syndrome kids, children with chronic illness, kids with extreme acting out behavior, and so on.   While mothers of these children share many of the trials and tribulations of parents with typical children; they have their own kind of agony of isolation, worry about the future, wondering if the child will ever be able to live independently, what will become of them when we parents are gone? And then in the present there is the embarrassment and mortification of their behavior in public, often their lack of friends thus making the parents their only social contact, the learning issues in school, sleep issues, food issues, maintaining good hygiene issues, to mention a few.

And in most families with Special Needs children, the mother is a stay at home Mom orchestrating all the appointments, from OT to Speech therapy, to tutoring, to psychotherapy. And usually figuring out the insurance papers (if they have insurance) falls to the Mom. The Dad is usually working his tail off to pay for all this. The toll it takes on a marriage and on the other children (if there are others) is enormous, as well as the financial drain this puts on the family.

Let me say that I don’t think for one minute that any of us would give up what we have done for our children. They bring us the gifts of patience, compassion for others, humor, a deep love connection, self reflection, courage and the gift of accepting what is.

How do we begin to listen to our own being, our soul, our wants and desires? First by thinking about what we have ignored or neglected in ourselves since becoming a mother. And then by looking at what we want to cultivate in ourselves. In the Mom’s group that I run with my colleague for Mother’s of Children with Special Needs this is what we are hearing. We want to create, paint, act, sing, exercise, gab with friends, have alone time, develop a spiritual practice, meditate, read, write, become more financially independent, see movies, have a Voice, go back to school, and be playful and happy without so much worry. In the coming weeks we are going to explore some of these themes.

Tell me what you have neglected and what you want to cultivate.

Introduction to Moms Soul Sanctuary

I was pulling my hair out. My daughter was 15 and in her room 99% of the time. I could not get her to talk to me, much less do anything with me. And I am a child and adolescent therapist! She ate only pasta, never exercised, called the out-of-doors a “foreign land” and never did any extra curricular activities at school. Yes, she had difficulties, but I was drowning in guilt, depression, and alienation from my friends with typical children. I didn’t know where to turn. Who could possibly understand what I was going through? My parents told me to go to Kaiser for meds....for me!

Then I met my friend Cynthia who has a child with autism and who is adopted from China. We started our own Mom’s group for US....Mom’s who are hurting, and sad, and isolated, racked with guilt about what they did or didn’t do, and Mom’s who needed to talk without being given advice or without being judged.

About 5  years later, Cynthia and I, both licenced therapists, decided to offer a group that could be like a sanctuary for these worn out, depressed, taxed to the max Moms who were suffering alone. What we offer is a place to reflect and share what it is like to raise a child with special needs.....what it is like for the Mom, as well as how it impacts their relationships with any other children they may have, how it impacts their marriages, and how it impacts their social relationships. But mostly it is about the Mom and Her soul, a place for her to reflect and gain some insight into who she is as a person, not just a mother.

I’d like this blog to be about that....the soul of us mothers who raise these children.....our hopes, our fears, our dark places, our light places.

One of our themes comes from Mark Nepo’s Book of Awakening: “Giving voice to what is inner is essential to surviving what is outer.”

Another theme comes from Kristen Neff who wrote a book on Self Compassion. We hold ourselves with compassion and love, no matter what.

A way to get some resources internally for a troubling situation is to do a bit of writing, such as the following.

Describe in writing a safe place for you, real or imagined. Get it as detailed as possible.

Describe a nurturing person, either real or imagined.

Describe a protective figure or animal, real or imagined.

And finally describe a wise/spiritual person....real or imagined.

You can write about these, you can visualize them, you can collage them or paint them. And when you think of your troubling situation, you can use one or many of these resources to help you. Listen to them, observe them, see what they have to offer you