A Mother's Aching Heart

What Do You Do When Your Heart Is Aching and Breaking For Your Child?

In some ways I am so lucky and blessed to have my daughter be so successful. She is smart and articulate. She is wickedly funny. She is careful with her (my) money. She is responsible and honest. I love her politics!  And she is in college pursuing her passion. What could be the problem?

She is lonely. She has a hard time initiating with friends and waits to be called or texted. When no one does, she feels no one likes her and that she is all alone in the world. I don’t know what to say, then. If I tell her how awesome she is she responds with, “You are my mother. You are supposed to feel that way”. It doesn’t help her feel better at all. If I give her advice (oh God.....dreaded mother advice) like maybe you could invite someone to do something with you. She says she doesn’t know what to do and if she can’t even get a response to texting “Hey, what’s up?”, she doesn’t think anyone will respond to an invitation. She is isolated and doesn’t leave her apartment for days. 

Argh! My heart breaks for her. And she doesn’t want to come visit me or have me visit her. Without the structure of school, she is at loose ends. So I try to listen empathically. And then she reassures me that she is fine and will be okay. She knows my heart is aching for her.

I’m imagining that there are many mothers of kids with Special Needs whose hearts break and ache for their children every day. When they come home from school having been bullied, or mocked, or left out, or the last to be chosen on a team, what can we do? For them; for ourselves?  Our kids have to deal with a cruel world that misunderstands them and doesn’t support them in the ways that are needed.

 And  parents who have children with a chronic illness, or a mental illness.....how do they maintain an attitude of bigger, stronger, wiser and kind? How do we listen reflectively? How do we not  pathologize them or infantilize them. And how do we keep ourselves and them from being in a state of denial refusing to address the reality of the situation. How do we not give up on them? How do we face hopelessness? 

How do we explain them to judgmental, “well meaning” friends, teachers, acquaintances and relatives who infer or directly accuse us of poor parenting? How do we deal with our beloved child’s isolation; as well as our own?

I would love to hear from you readers about how you have dealt with this in your own situation. For me, I have run the gamut. At first, I worried silently. I loved her with all my heart, and yet I knew something was wrong. Her Dad thought I was being critical of her and seeing problems when they were not there. I think this is typical in many families where one parent senses something is off and the other defends the child, causing a rift between the  parents. This can go on for years and is so painful to both parents who have different views on what is happening and very different styles of dealing with their children.

After worrying silently, I went to professionals for assessments and evaluations trying to gain more understanding. This is an extremely costly endeavor and invokes such anxiety in parents and children. The parents are scared to death to find out something frightening and the child, no matter how young, is wondering what is wrong with me? Why am I going to all these doctors?

As a child therapist, I do my best to help families with this phase. I am able to use non -judgmental language, and accurate descriptions to help everyone understand what is going on. I must say that I have had mostly great experiences with this, probably because I have been there and know how to talk to the parents and kids with love and compassion about differences.

My next phase was trying to change the world for my daughter. I was in the school helping the school counselor devise empathy training to help the other kids understand her differences. The counselor told me she had done this in my daughter’s 6th grade classroom, and described to her classmates how kids with asperger’s syndrome have no sixth sense (social sense). And that can make them seem awkward or “strange”. But it is not their fault; just like it is not a blind person’s fault if they can’t see. And you wouldn’t make fun of a blind person or tell a blind person to cross the street without assistance, would you? In the same way, the child with a social difficulty needs help and understanding; not derisiveness or tricks being played on them. My daughter apparently raised her hand and said, “That’s me. That’s what I have.” (So asperger’s -like to do that). And several classmates apologized to her right then and there. She  stood up and said, “I will accept your apologies. But you shouldn’t make fun of anyone for any reason.” My heart swelled with pride, but it was also aching for her. She was so vulnerable.

And on it goes. I advocated for her. I tried to raise consciousness about kids with Special Needs. I fought the school system to get her accomodations. I wrote about anti-bullying in the newspaper. But I often cried myself to sleep and worried. I believed in her and knew she would be an outstanding human being. But when your child suffers, you suffer.

As I’ve said before, having other mothers of children with Special Needs to talk to has been invaluable. Finding self compassion has been helpful. And at some moments, I find this awesome connection with her. That makes my heart sing.

Please share your stories with me. It takes us reaching out to each other and saying, “I feel you. I feel your pain”  to bear an aching heart. Bless you for all you bear for yourselves and your children. We need each other and they need us.

Self Compassion

Self Compassion

We talked about self compassion in our Mom’s group this week and it brought a lot of emotions up for me. So I thought I would write about it and see if it touches a chord with anyone else.

I’ve learned about self compassion from Kristen Neff, Brenee Brown and Oprah, to mention a few resources. (You can google their names and self compassion....many youtube videos will come up). I’ll give you my interpretation of it. Self compassion is loving and caring for yourself the way you would for a dear friend. It is having unconditional understanding and empathy for yourself. 

Why is this so difficult? Why does it not come naturally for us? Why do we have to learn it? Why does it seem foreign to us? 

For me, I think I confused it with narcissism, selfishness, or even pride which was one of those seven deadly sins in the Catholic church. It seemed counter intuitive. When something “bad” happens, like a car accident, or a child melting down in a store, or a bounced check, or someone screaming at you, shouldn’t you feel shame and and want to hide? Shouldn’t you “take responsibility” for your part and beat your breast with mea culpas? OMG this could last for days or longer. Shouldn’t you beg for forgiveness and say how “bad/wrong” you were?

And then there is our culture of shame and wish for punishment/revenge. Our culture wants to make poor people feel like it is their fault for living in poverty. Isn’t this the land of opportunity? NOT. Our culture makes victims of crime like rape or domestic violence or racial inequality feel shame. Our culture makes parents of children with Special Needs who act out when over stimulated or act inappropriately in public situations feel shame. How sad this is. Sometimes this feeling of shame can last for years: sadly, even a lifetime.

Most of us were not treated with compassion as children when we did wrong, or when we were needy and alone. How could we develop self compassion if it was not shown to us? 

When was the last time you felt understood/cared for by being shamed and blamed? And did that admonishment make you feel like you wanted to do the “right” thing? Often parents shame their children when they lie, thinking it will help correct this behavior. But usually what happens is they lie more, because they feel shame for their behavior and can not stand more shaming.

I remember telling my daughter that if she did something wrong and told me the truth about it, she would get a “small” consequence. But if she lied about it, she would get a much bigger consequence. I had this conversation with her, on our way to Kaiser where I needed to run in and pick up some meds. She was about 9 and wanted to stay in the car by herself. I locked her in and told her to stay there. When I came back, she was in the back seat and had obviously been in and out of the car. I asked her what she had done. She thought about it and asked me if it was true that if she told the truth there would only be a small consequence. I assured her, yes I would keep my word. So she told me she had had to go to the bathroom and got out of the car and peed in the parking lot because she didn’t dare to leave the car to go in to the clinic. She had just gotten back in when I arrived. I understood she was trying to do what I said by not “leaving the car”, but she was in a bind and had to pee. I was not thrilled that she peed in the parking lot, but I got her dilemma. I could have shamed her and told her to never pee outside in public like that. But I chose not to and she escaped a consequence. We eventually developed an ethic of trust and openness. No shame, no blame.

So when it comes to ourselves, how do we have self compassion?  Kristen Neff recommends wrapping our arms around ourselves, or holding our own hands, or putting our hands over our heart. Physical touch is so comforting. She says, “we can be soothing with ourselves, saying that this is a tough situation. So difficult. Oooooouuuuu, sweetie, this is hard”. We can comfort ourselves the way we would a child or best friend. We would never tell a friend that she is irresponsible and stupid to bounce a check or to have gotten into a fender bender. Why would we speak to ourselves that way?

I was lucky in a way to know that God loved/loves me unconditionally (one of the few, but important benefits of Catholicism). When I learned about self compassion, I tried to embody God speaking to me.  S/he was all loving, all knowing, all understanding and compassionate. That’s how I found my own self compassion.

As mothers of children with Special Needs we need to find that self compassionate voice.... either someone you know, imagine, or make up. It is essential to healthy functioning when we live in this critical culture. And I believe, the more self compassion we have, the more we will attract people with like minds. And the better able we will be to give this to our children, who so need it. Living with Special Needs as a child or parent is daunting in our culture. Please check out self compassion on YouTube and practice it daily.

I’d love to hear your thoughts and experiences.

Much love and compassion to each and every one of you.

Father’s Day

I want to acknowledge Father’s Day and the importance of Fathers in their children’s lives. I know I write this blog primarily for mothers, since I am a mother and feel I have the most to offer from that perspective. But, I also work with many fathers in my practice, have good friends who are fathers, and value the contribution and input of my daughter’s father in her life.

I took a training in the early 2000’s with John Gottman from Seattle based on his book “And Baby Makes 3”. It was a training to work with new parents helping them adjust to the new configuration of adding a baby into their lives and into their relationship dynamic. John does an excellent job of describing the value of father love and father input, especially helping mothers see the value of Dad in their children’s lives. Some of it made me ashamed of what I had ignorantly done in the first year of my daughter’s life with me and her Dad. I did not know that it was dismissive of him for me to come home from the store after he had bathed and dressed her, only to immediately change her outfit to one I thought was cuter, more coordinated, and just “looked better” on her. I often took her from his arms when she was crying, assuming I could soothe her better....not trusting that they could find their way. I thought mother love was “superior” to father love. Fortunately, I could see their love for each other grow, and I knew even though she preferred me when she was upset, that she also loved and enjoyed her Dad very much. Going away from them on a vacation with my girlfriend for a weekend to Santa Cruz when she was 3, was hard for me; but it did them a world of good and I could see their bond was strong and healthy.  Today they have an awesome relationship and will be spending the day together. 

Mothers sometimes undermine fathers’ relationships with their children. Father love is different. Fathers tend to be more playful, more rough and tumble, more exciting. They can cheer their child on to climb to the top of the slide, while mothers can be holding their breath afraid it is too dangerous for the child.Fathers can teach their children to skateboard, ski, ride a bike, dive, surf, play sports...all of which will help them conquer their fears and develop their self confidence. Children can pick up on subtle put downs of the father by the mother (this can also go the other way, too.....fathers putting mothers down). A simple rolling of the eyes, or disgusted sigh can give clues to the child that the mother is not liking what the Dad is doing. Children can pick up on this and sometimes follow suit colluding with the mother in keeping the father out. Of course, this is not helpful to the child and may even be confusing and damaging. It is imperative that we as mothers allow our children to form their own special unique attachment and connection to their father. It takes restraint on our part not to taint the relationship water with our disapproval or need to make the other parent bad. Even if we don’t like how the other parents, it is essential not to air this in front of the children. Parenting differences need to be addressed privately or with a parenting therapist.

Research (by Joan Kelly, PhD et. al. )has shown that children who have caring father involvement get better grades in school, are better able to emotionally regulate themselves, show more warmth and acceptance toward a second born sibling, have better peer relationships, are more sociable as infants, and have fewer behavioral problems, solve problems better over their lifetime, have more satisfying adult relationships and cope and adapt better to difficult life situations.

The newer research is impacting custody plans by increasing the father’s involvement with his children to a 50/50 percent ratio with mother and father’s time considered as equally important and valuable. 

The first doll house play scenario my daughter enacted in my office showed her and the Dad sitting together watching the news in the living room. I asked her where the Mom was, and she said, “She’s at work”. Aaaaah, that was painful for me, but it was then that I realized I could work with clients until 6 or 7 and she was safe at home with her Dad, not needing to be in a daycare situation. She learned to identify all the instruments in any piece of jazz music from her father, she learned the constellations in the sky from her father, she learned about plants and and flowers from her father. I could go on and on, but the point is she learned a great deal from her father’s gifts, and continues to do so. 

So to all you Dads, Happy Father’ Day. I hope you feel appreciated for all you do.

Shark Music

Shark Music

I have mentioned several times in this blog,  the training I have received in The Circle of Security Parenting Program, as well as the book, The Circle of Security Intervention by Powell, Cooper Hoffman and Marvin, 2014.

One of the most powerful concepts in Circle of Security is that of “shark music”. Basically this is the experience of a caregiver being triggered by her child. It is responding to a safe need that the child is expressing as though it were dangerous. 

In the DVD video clip a scene is shown with music of a trail to an ocean beach. It looks like a beautiful peaceful scene, like a place you could walk and feel serene and comfortable. The camera follows the path down to the beach and we see the glorious Pacific ocean while the music from Pachebel’s Canon (sweet, calm, classical music) plays in the background. Then the same exact video clip is played, except this time it is the music from the movie Jaws. As we follow the camera down to the beach, we have a sense of impending doom; like something terrible, terrifying is about to happen. It is quite a difference. Then we are told that the background music we play in our heads determines our state of mind when responding to our child’s needs. If our child’s need creates a sense of terrifying danger in us, we will not be able to respond in a way that meets our child’s need. We call this “shark music” playing in our heads.

Why does this happen? “We do unto others as we’re done to.”(Selma Fraiberg, 1980) The parenting we received colors/influences our reactions and responses to our children’s needs.

A baby begins to cry and fuss. The mother feels rejected, helpless and triggered. She tells the child to stop crying in a harsh tone, which makes the baby cry even more. The mother becomes dysregulated/upset. She wants the child to calm down to take care of her own need to not feel rejected. By gentle inquiry into the mother’s response, we discover that she was rejected by her mother when she expressed need for comfort. This baby’s mother unconsciously fears her child’s need for comfort, because when she expressed it, she was punished or reprimanded. She learned to shut that need down and now is trying to teach her baby to do the same thing.....at a great cost to the baby. When we can uncover the reason for these automatic responses, we can then have more awareness of our behavior and hopefully we can allow ourselves to choose to respond differently. 

In my practice I have taught this concept to many parents. Some even use “my shark music is going off” as code to the other parent for “I can’t handle this right now, can you please take over for a few minutes while I collect myself?” Parents tell me this is so helpful and non shaming. Each gets the other’s alarm and distress and can help by coming in to meet the child’s need in an appropriate way.

I was at my friend’s house when his little boy was having a melt down in the kitchen. The father was cooking dinner and the boy was hungry, protesting that he didn’t like what the father was cooking. He was crying at his father’s feet with his arms around his father’s ankles, making it impossible for him to move without potentially stepping on his son. Food was sizzling on the stove. He yelled to me, saying, “Can you come in here and get Joey? I can’t deal with him right now!” Of course, I went in and picked Joey up and brought him to another room holding him and comforting him. Fortunately, he was able to be distracted and soothed, and we had a wonderful dinner together soon after that.

These are the examples I heard just this week regarding parents experiencing shark music:

*siblings fighting and screaming in the back seat of the car while parent is driving in stressful traffic

*19 year old daughter face times her mother while daughter is drinking vodka from a bottle and walking down the middle of the street in traffic

*21 year old daughter tells her mother if mother really loved her, she would pay her $1100. roaming fees

*teen steals parent’s credit card info and parent discovers $800. charges from an internet website

*parent who lost a sibling to traffic accident discovers her son with autism and poor balance, riding his scooter through the neighborhood without permission

In each of these it is difficult to see what the child needs from the parent who is so upset and triggered.  And it is hard not to respond in a shaming, punitive way. All of these parents did get a handle on their shark music, given some time and reflection, and were able to repair their connection with their child. 

The driving parent was able to acknowledge that he used a mean voice with the children and that he scared them. He acknowledged that they were hungry and hot and tired. They really needed him to pull off the road and give them some food and water and regroup. He promised to do that next time.

The mother realized her daughter had just had a traumatizing event and daughter did not know what else to do except try to numb herself and then do something really scary to get her mother’s attention. When the mother calmed her shark music down, she was able to get help for the daughter and then they had a heart to heart talk repairing their connection.

After the mother of the 21 year old got over her furor with her daughter’s sense of entitlement, she addressed the issue of love with her daughter.  She described how love was also teaching her daughter to be fiscally responsible.

The mother so frightened for her son’s safety realized she needed to be able to tolerate her anxiety so her son would be able to discuss his need for independence without getting a non compromising “NO”.

In my own experience, having a child with special needs in and of itself set off my shark music. Was it my fault, could I “make” her ‘look’ neurotypical, how could I explain this to my parents and family? Would they accept her? My shark music was going much of the time in those early years. When we have neuro-atypical children, it can be very challenging to see what our child’s need is apart from what is socially acceptable. My child needed to sleep in my bed until she was 5. I discouraged this at first, hearing my mother’s voice telling me I was spoiling her. I dutifully put her back in her own bed twice a night. After reflecting on this, I finally “got” that she really needed to sleep with her father and me. And so it was....no more struggle. It was my shark music coming from my mother who shunned any “neediness” on my part that kept me shoving her away. We need to find a way to acknowledge our shark music, put it aside, and tend to our child’s needs. And if we can’t do it in the moment, we can repair it soon thereafter.

As always, I invite you to share your stories of shark music with me in the comments section of the blog. 

And again, as always, bless each and every one of you for all you do for your children.

They may not be able to thank you or appreciate the difficult and awesome job you are

doing, but I want to acknowledge your love and your willingness to reflect in making your relationship with your child meaningful and connected.

Summer Envy

Summer Envy

I read a piece in the NYT this morning http://www.nytimes.com/2014/05/25/nyregion/sympathy-for-the-working-mother.html?ref=todayspaper&_r=0 called Summertime Sympathy for the Working Mother. It was basically about the envy/longing that working mothers (who will be at their out of the home job, all summer) feel toward Moms who can leave the City with their children for a month or more to go to the beach in Croatia or Maine or Cape Cod, or go to a family tennis camp for the month of August, or just spend the summer days being with their children on trips to San Francisco, Disneyland, or the San Juan Islands.

I remember feeling that way when my daughter was in all those camps the YMCA put on, “enriching” summer school programs, and swimming lessons. I had been hopeful that they would provide some sort of stimulation, fun and even creativity while simultaneously serving the main purpose of providing child care. I don’t think there was one program that she liked. And she came home from the first day of “enrichment summer school” saying dejectedly,  “ Mom, you won’t believe it. Recess is TWICE as long in summer school.” She hated recess, always; but even more so in the summer. It was hot. There was no structure provided. No games, no inside board games, no card games, no art, no one helping outside getting the kids involved with each other. She was ignored by most kids. She had to stay outside feeling alone, bored and uncomfortable. I marched down to the school and complained. Couldn’t they offer something for the kids who didn’t play on the bars, or play basketball? I was angry.

I acted outraged. But nothing changed. I felt horrible. I had to send my child to a place she hated, so I could work, when I would have loved to have stayed home with her... I think, or so I thought.

On the other hand, imagine being a stay at home Mom because you have a child/children with Special Needs and you can not afford child care or camp, and there is no summer school for your child. Long summer days are spent trying to keep your children from playing endless video games or watching Youtube videos or fighting with each other. The children seem listless, uninterested in reading or sports or riding their bikes. Some hate the water. Some hate being outside. Some want to sleep all day.

Hey, going to work every morning seems like a piece of cake compared to this. You know they should be doing some reading, writing and arithmetic during the summer months to keep them from falling behind. (Statistics say that it takes until November for kids to catch up to where they were in June if they do no school work over the summer).

More guilt. Try to get an ADHD kid to read a book or write a story over summer. Try to get a kid with Oppositional Defiant Disorder to do pages in a math book a half an hour a day all summer. Probably not going to happen.

So I’ll tell you what I did when my daughter turned 11 and she refused all those camps, lessons and programs. It’s not a perfect solution and won’t work for everyone. But maybe it will spark an idea for some of you.

Yes, my daughter was “addicted” to video games, she loved TV, and she hated going to what she called, “the foreign land, ‘the out of doors’. UGH! How could this be happening? Couldn’t I MAKE her go outside, swim, read, watch good historical movies, journal? Couldn’t I FORBID her from watching TV and playing video games? (I love the book “Shut Up About Your Perfect Kids”!! which talks about parents who can do that). Not without having a very, very unhappy 11 or 12 year old. No one wants their kid to be miserable all summer. Or angry and sullen with you most of the time. 

I did institute an hour for hour outside time for TV and video games. So she had to be outside for an hour in order to get an hour of video gaming or an hour of TV. She could ride her bike or swim or she could even read outside and then she could get her beloved video or TV show. Mostly that worked, but it wasn’t easy. She wore me down some days.

The best thing was inspired by a group of us mothers at a Memorial Day picnic. We were all in a dilemma about the summer. Some of us worked outside the home and some did not. There were about 5 or 6 of us. We decided to “sign up” for days to have the kids “play together” with no video games or TV. I didn’t work on Fridays that summer so I volunteered to have the kids about 5 Fridays during the summer. I had between 5 and 6 kids each time. We went tubing on the Russian River,  to Golden Gate park to visit the science hall and the planetarium, and to Great America. I also created an art day in the back yard with paints and clay. One parent took the kids to China Town in San Francisco. One parent took the kids to a water park. Another parent hosted an  outdoor adventure in their wooded half an acre back yard. And one day we agreed they could play video games together for 2 hours with a bike ride to follow. I still needed to have a child care person for her on the days there were no get togethers. But it sure  helped to have some days where she was with kids she liked doing something stimulating.

Other parents have shared with me that they hosted an art show of their daughter’s paintings and art creations inviting neighbors and adult friends. It took many days to  create the exhibits and the art show party was complete with snacks and drinks. I was invited and it was quite festive. That talented girl was beaming!!

My daughter in later years did co-create a kind of kid’s newspaper with news of the friends and what they were doing. My daughter did the cartoons using her friends as the characters. This was very cool.....but of course it didn’t last long. Follow through in Summer is difficult at best.

And I know some of you have children with no friends. Summertime Sympathy is deserved for Mothers of children with Special Needs whether the Moms work all summer or are home all summer. or a combination there of. As this Memorial Day signals the beginning of summer, please know I get the agony summer can bring. Bless each and every one of you for all you do.

And if you don’t do anything amazing for your child, please have self compassion and be kind to yourself. YOU are AMAZING raising your child in the best way you know how.

Mother's Day, 2014, Post Script

Mother’s Day, Post Script

No sooner had I published the earlier blog than I realized I had not acknowledged the mothers who have lost children, either through death, mental illness, incarceration, alienation and probably many more ways.

This is a tough day. My heart goes out to you. Again, it is okay to grieve your loss. This blog is about being real. You don’t have to pretend with me or anyone who reads this blog. Motherhood is fraught with pain and sorrow, sometimes. I commend you for all you did to try with your child, all the ways you loved your child, all the ways you helped your child, all the ways you held your child.

Much love to you.....

Mother's Day, 2014

Mother’s Day

It is with a heavy heart that I am writing this morning of Mother’s Day, 2014. It’s not about me and my daughter. She and I had a lovely day together yesterday. She even let me help her clean her apartment. I know, seriously? Letting me help her clean was my present. And her bathroom and kitchen are sparkling!  Makes my heart sing. We did break yet another vacuum (the third she has had), but I ordered her one last night and hopefully it will help her do the finishing touch when she gets it tomorrow.

Mother’s Day brings up so much pain for people; and, yours truly, had so much sadness yesterday. The family members of two different people I know had someone in their family die tragically yesterday. They were unrelated. I feel the fragility of life today. I feel the immensity of love. I feel the sorrow of loss.

Today I am holding all the people who have lost their mothers or grandmothers; and all the mothers and grandmothers who are holding the children suffering the devastating loss of a parent. It is unfathomable.

I remember talking to my mother-in-law who lost one of her sons when he was only 7. I asked her how she managed to go on. She said, “You just do.” And that’s what it is. You keep going somehow by the grace of God. 

To all you mother-less children, I want to send you a blessing and hope that you can find your own internal good mother who loves you unconditionally. You need her. You especially need her as you grieve your “mother-loss” today. If there were any way your mother could be with you, she would be. Your inner mother can embrace you as your tears flow and stroke your head with gentle compassion. 

And if you are missing your grandmother today, honor her in some way; with a flower or a poem or a lit candle. It can soothe your heart to give agency to your grief.

Not all of us miss our mothers today. Mother relationship is so complicated. If you do not miss your mother today, let that be so and be okay. You get to have your own feelings. They don’t have to be legislated by Hallmark greeting cards or movies. I hope, though, that you have found a good friend, sister, therapist, auntie, cousin, mentor or inner mother to give you that sense of unconditional love that you so deserve and need.

And to all of you mothers and grandmothers who are doing the work of mothering, I give you high praise for the most difficult job on earth. I thank you for helping to make this world a better place.

In gratitude, Happy Mother’s Day.